I am a young 64. I have had endometriosis sense menstruation at 13. Applied 17 times for my disability. Had six major surgeries. Hysterectomy doesn’t clear it either. Dr Redwine was the expert ant that time but went to Bend Oregon. l was not diagnosed until l was 24.
Im so tired of ADHD. There’s a doctor Mackenzie is MA. I am still in horrible pain.
Hi I’m a new member.
I am slowly starting to consider a hysterectomy myself but also considering removal of the ovaries
My husband searched the web that this could help reduce the reoccurrence of endometrial tissue but definitely mention to your doctor if this is an option
Blessings and prayers for your recovery 
I had a total hysterectomy and l still have endometriosis. Its not the answer if that’s what your Doctor recommends he’s not a very sophisticated Dr. Get a Dr that specializes in endometriosis usually it’s in an urban area. Small towns rarely have experts. I don’t know who the expert is in Endo it uses to be Dr Redwine.
I am 64 and l am still dealing with Endo. 4 major surgeries that preserved my organs but never was like wow this is great. Some people just have one surgery and it’s gone . It’s a weird disease it travels all through your body
That’s what I am worried about is once I get rid of any reproductive organs to signal the brain to produce more estrogen or to hopefully reduce the endometrial tissue latched onto anything else that I hope to find a doctor the excursion and cauterized as much that they can
I can only imagine and hope you find relief in this.
I am in so much pain this morning. It’s on my bowel l think . I had a colonoscopy and nothing was inside. I am 64 and Endo started at 13 5 major surgeries. No one can understand because it’s invisible. My hands are shaking. It looks like you know what your doing from your post.
Make sure to read the review of the Doctor. I went to emergency room two weeks ago it was and Endo flare up and l had lost my ADHD medicine. The wrote l had an anxiety attack. I need that straightened out in case l go again they know what l have. I had a Dr too that said l had a kidney problem and that was it.lm getting a knew primary Doctor.* Hate Endometriosis. I have an MRI with contrast scheduled on Wednesday with an obgyn he specializes in endometriosis. I am anxious and looking forward to it. I said to him you never can see the endometriosis you have to go inside He said no the MRI should show it. Online l saw a Dr that uses ultrasound. I had ultrasound done last year MRI exrays
ys. They didnt show anything. I’m using midol for pain. It’s like my body calls the shots . I want to try working but l can’t rely on my body. Something on line would be better.Thanks for listening
Damn so sorry to hear about this. Sending you hugs and prayers. Thank you for sharing your thoughts with me. I’ll see how this goes and make sure I am very thorough. It is unfortunate that some doctors or the insurance companies waive their ignorance so quickly about endo.
Thanks again 
Hi I am new on here and see that you are considering a hysterectomy for your pain of endo! I had mine just over 5 years ago, and for me it hasnt helped! It has hust spiraled into other areas, or it was just being masked in other areas because I still had the female organs! This disease is diffrent for everyone! It is so painful and for me there aren’t any pain meds that come close to touching the pain. I have had so many surgeries I have lost count. I have my first appoint with an endometriosis specialist in Michigan on May 20th. My obgyn had refered me to either Mayo or Cleveland Clinic and I have done enough research to know that, those are not the places to go. This disease reaks havoc on your body! Causing other autoimmune immune conditions as well! You can have a good day or week, and feel like you cand do so many things, and then boom the next day your body is screaming at you saying just kidding! Anyways best of luck to you! I hope it all works out!
You are well schooled it remains after hysterectomy they had to take the last remains of my ovary. They cannot get all the Endo out and there are other hormones that exist that help the remains feed off of. Your giving up the elasticity of your skin when your ovaries are gone. It throughs your body into instant menopause l remember my body freaking out in the hospital. It’s an evil disease like today l have not been able to go to the bathroom fully for days and there’s tenderness in my pelvic area sometimes it affects my sciatica my bowels now my foot hurts and l know it’s Endo. This attack was in full swing yesterday had trouble walking balance off . I have vertigo also.
They don’t want to do any more surgery and they cannot see it on the millions of MRI well l know that l told them that. I have to find another OBGYN. I’m so sick of the doctor l have to go to pain MGMT l have a mental health Dr. I am going to have to find a neurologist. My hands have been falling asleep for a long time and l always thought it was because of Endo some adhesions was on a nerve or something now it’s my feet.
I hate endo