Hi all! This is my first post here, and I’m glad that I have found another community for Endometriosis. I have Stage IV Endo with a frozen pelvis and two large cysts on my ovaries (one on each), so living with Endo pain changes from day to day. I have had two lap surgeries to help remove the lesions, drain the previous cysts, and free up my pelvis. All of these issues have come back in less than a year, making my periods quite awful as of recent.
To get to the actual part of my post, I am concerned about my constant bleeding. I have not stopped bleeding since May and since endometriosis doesn’t directly cause this, I am not sure what the issue is. My endo surgeon is concerned and we’re waiting on blood work and another US, but I am curious to know if any of you have experienced this. I have done so much research but it’s all up in the air with what could be causing this. With all of the constant hormone changes due to the different medications I’ve been put on and taken off of, I kind of want to attribute it to this moderate to mild, brown bleeding/spotting that’s happening. I’m hoping it’s not uterine cancer, as I had a CT scan in the ER recently and my uterus didn’t light up like a Christmas tree.
I’m glad I found this place and all of you! We can get through it together!